Treating your child

IN THIS SECTION

Download the Parent and Caregiver Brochure:

If you did not receive injection training when your child was in the hospital and need to learn, or if you just want a quick review, this training video will walk you through each step.

 

English

 

Spanish

You can also download the Step-by-Step Injection Guide in English or Spanish to learn about injecting Acthar and to keep handy during your child's injections. It contains information about preparation, injection, and storage and disposal.

Also, treatment resources can help you keep track of your child's progress and your treatment schedule.

None of these resources is a replacement for your doctor's advice. Call the doctor who prescribed Acthar for your baby if you have any questions about the injection process or about Acthar for your baby.

Tips for fuss-free injections

Many parents find the idea of giving an injection to their child difficult at first. It's important to keep in mind that giving Acthar to your baby may help him or her recover from IS. These simple steps may help you—and your child—feel more confident about the injection process.

  • Carefully warm Acthar. Acthar should be stored in the refrigerator at 36°F to 46°F (2°C to 8°C). Before each injection, warm the vial to room temperature between your hands or under an arm
  • Stay calm. If you're feeling anxious or stressed, your child may reflect the same feelings. Remember that each injection only takes a moment and is important to your child's health
  • Distract the baby. You might squeeze your child's hand, sing songs, or blow on your baby's face. Limitless distractions are all around you. Try one whenever you need it
  • Use a little sugar. Try giving your child a little sugar water before the injection, or dipping a pacifier into sugar water for him or her to suck on during the injection
  • Team up and cuddle. If possible, you might give the injection while another caregiver holds or comforts your child. This close contact may help your baby stay calm
  • Gently rub the skin. When you lightly rub the injection site after giving a shot, it can feel like a light massage and help the injection seem less painful
  • Create a schedule. Plan injections for times when you and your child are most likely to be at home. You may be more at ease in a familiar location and you can easily contact the doctor if needed
  • Pick a spot. Choose a location in your home to perform your child's injections. Your baby will come to expect a shot in that place—and will know the shot is over when they leave
  • Update the doctor. Your child's doctor is your partner throughout your child's Acthar treatment. Share your baby's progress and don't be afraid to ask questions if you're unsure about anything

Helpful Resources

How Acthar may help

Acthar has been proven to stop spasms and hypsarrhythmia in children with IS.

Meet Acthar families

Watch others who have been through the entire process of diagnosis and treatment tell you in their own words what to expect when a child has IS.

Acthar A.S.A.P.

See the many ways the Acthar Support & Access Program (A.S.A.P.) can help you get Acthar for your child with IS.