Real families with real stories

Share their stories

Like you, many families have found themselves looking for information and videos to help their children who have been diagnosed with infantile spasms (IS). Watch as a few of them describe their experiences with identifying the disorder and completing treatment with Acthar.

While your child is taking Acthar, tell the doctor right away if you notice allergic reactions. Your child's body may develop antibodies or become sensitive when Acthar is used long-term. Signs of allergic reaction in children are skin rash; swelling of the face, tongue, lips, or throat; and trouble breathing. These side effects are not all of the side effects possible with Acthar. Ask your child's doctor for more information. Tell the doctor if there is any side effect that bothers your child or that does not go away.

 

Ella

 

Bella

 

Zachary

Helpful Resources

Treatment calendar

Keep track of your child's injection training schedule and progress.

Download your calendar

How Acthar may help

Acthar has been proven to stop spasms and hypsarrhythmia in children with IS.

Helpful links

There are many helpful sites you can visit for more information about IS.