Understanding infantile spasms

Maybe it's something you see.
Something just isn't right.

Infantile spasms (IS) is a rare condition that affects around 2500 children each year, most of them under age 2. Sometimes called West syndrome, infantile spasms demands early identification, diagnosis, and treatment to help limit lasting effects. It can be mistaken for other conditions, like colic or gastroesophageal reflux disease (GERD), so it is important to know the infantile spasms symptoms.

Identifying IS

Some cases of IS have an identifiable cause, others do not. No matter what the cause of your baby's IS, it's important to speak with your pediatrician as soon as possible. Learn about infantile spasms causes and what you should do if IS is suspected.

Getting a diagnosis

There's a lot you can do to help your doctor if you suspect IS. One thing is to record a video of the movements and show it to your doctor. This can speed a referral to a specialist who is familiar with IS and can provide an IS diagnosis.

Hypsarrhythmia is a key factor in diagnosing IS. Learn about the process of identifying hypsarrhythmia when you suspect IS.

Treating IS

Having a child diagnosed with IS is a trying time. The good news is that appropriate treatment has been shown to help children with IS address the immediate spasms and chaotic brain waves of the condition. Your doctor will guide you through all treatment options, including Acthar.

Specific side effects of Acthar in children under 2 years of age include increased risk of infections, increased blood pressure, irritability, symptoms of Cushing's syndrome, cardiac hypertrophy (thickening of the heart muscle), and weight gain.

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Helpful Resources

Parent and Caregiver Brochure

Learn more about your child's IS and treatment with Acthar from this helpful and informative brochure.

Download your brochure

Acthar A.S.A.P.

See the many ways the Acthar Support & Access Program (A.S.A.P.) can help you get Acthar for your child with IS.

Learn how to give Acthar

Step-by-step videos help you walk through the administration process so you can learn, and then review, at your own pace.